We share information about you with others directly involved in your care; and also share more limited information for indirect care purposes.
We will only share information about you in compliance with the GDPR and Data Protection Act 2018.
Everyone working within the NHS has a legal duty to keep information about you confidential. Similarly, anyone who receives such information from us on a confidential basis also has a legal duty to keep it confidential.
Direct care purposes
You may be receiving care from other people as well as the NHS, for example social care services. We may need to share some information about you with them so we can all work together for your benefit if they have a genuine need for it or we have your permission.
Therefore, we may also share your information, subject to strict agreement about how it will be used, with:
We will not disclose your information to any other third parties without your permission unless there are exceptional circumstances, such as if the health and safety of others is at risk or if the law requires us to pass on the information.
Indirect care purposes
We also use information we hold about you to:
Nationally, there are strict controls on how your information is used for these purposes.
These control whether your information has to be “de-identified” first and with whom we may share identifiable information.
National Cancer Registry
If you are diagnosed with cancer or a condition that may lead to cancer, the team looking after you at the Trust will record information about you and the care you received. This applies to children and adults of all ages.
This information is shared with the National Cancer Registry, which is part of Public Health England.
The National Cancer Registry has the government’s permission to collect and use information about people with cancer. This is because it is in the public interest to use this information to improve the way cancer is diagnosed and treated.
The information collected on the Registry will include your name, date of birth, your sex and ethnic background, your address and NHS number, information about your diagnosis and treatment and how well your treatment is working. This information may be linked to other health information that Public Health England receive about you.
Cancer Registration leads to improvements in preventing, diagnosing and treating cancer.
Your information is kept confidential by those authorised to access it.
You have the right to opt out of cancer registration. This will not affect the care you receive from your healthcare team.
If you do not wish for your information to be included in the national cancer registry, you can contact Public Health England at firstname.lastname@example.org or write to:
Director, National Cancer Registry
Public Health England
6th Floor, Wellington House
133-155 Waterloo Road
London, SE1 8UG
Further information can be found in the Public Health England Cancer Registration Leaflet
All information we hold about you is confidential. We will not release any information about you without your consent, except to other professionals involved in your care or in exceptional circumstances for instance when the health and safety of others is at risk, where there is a lawful basis to share the information or where the law requires information to be passed on.
High-cost drug patient data to support the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS)
To identify patients who have received specific high-cost drugs for the treatment of a rare disease, NHS England and Improvement are working with NCARDRS to improve the commissioning decisions for these and future high-cost drugs. In order to support this decision making the Trust is required to share the details (including NHS number and date of birth) of any patients receiving high-cost drugs for the treatment of rare diseases to NCARDRS.
NCARDRS has permission to process confidential patient information (without prior patient consent) afforded through Regulation 5 of The Health Service (Control of Patient Information) Regulations 2002. Specific permission has been granted to Public Health England through the Health Research Authority’s Confidentiality Advisory Group (CAG) process for Regulation 5 (Ref: CAG10-02(d)/2015) access to confidential patient information without consent through Section 60 of the Health and Social Care Act 2001 as re-enacted by Section 251 of the NHS Act 2006.
National data opt outs do not apply to the national disease registration, and NCARDRS has implemented a policy of supporting opt out requests from patients. This is publicised through the NCARDRS website and patient information leaflet, as well as through representatives. If you would like to request copies of the leaflet, please email NDRSengagement@nhs.net or you can find more information, and access the leaflet, from the National Disease Registration Service webpage https://www.ndrs.nhs.uk/
Access to shared systems
The Trust is part of the Cheshire and Merseyside Radiology Network consortium that use the same radiology system. All access and sharing arrangements are closely monitored by the trusts within the consortium.
More information about the sharing arrangements in place can be obtained from the Trust’s Radiology Department or the Data Protection Officer.
When other people need information about you
There may be circumstances when other agencies need information about you or where we must share information with other agencies. In these rare circumstances we are not required to seek your consent. For example:
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